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Abuja 2025: The Global Sickle Cell Congress Comes Home

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By Obi Light Ogbonnia

When the 5th Global Congress on Sickle Cell Disease convenes in Abuja in June 2025, it won’t just be another event in a long line of medical conferences, it will be a homecoming. For the first time, the world will gather at the very heart of the sickle cell crisis: Nigeria, the global epicenter, where over 150,000 babies are born annually with the condition.

For decades, sickle cell discourse has largely been shaped in the halls of Western research institutions and international conference centers.

Cities like Paris, Atlanta, London, and Accra have hosted past editions, laying foundations for research collaboration, clinical trials, and drug development.
Yet none of these cities carry the raw urgency, the lived reality, and the generational impact of sickle cell disorder quite like Abuja does.

In Nigeria, sickle cell isn’t just a statistic, it is a daily struggle etched into families, communities, and over four million warriors fighting for survival, dignity, and access to care.

A Turning Point for the Warriors

For Nigeria’s sickle cell warriors, Abuja 2025 carries profound expectations. Many are hoping for more than discussions, they are demanding action. They seek the latest in gene therapy and emerging treatments, but they also need policies that make these breakthroughs accessible. They want to be recognized not just as patients, but as partners in designing their future.

We want to move beyond awareness to empowerment, beyond diagnosis to solutions, beyond pity to partnerships.

Healthcare Systems Must Rise

The Congress is also a moment of truth for Nigeria’s healthcare system. Despite being the sickle cell capital of the world, the country still struggles with basic infrastructure, nationwide newborn screening, early intervention, and accessible care remain far from reach.

Will Abuja 2025 be remembered for grand speeches and panels, or for concrete policy shifts, investment in care centers, and life-changing public health decisions?

From Civil Society to Global Solidarity

This is also a call to action for NGOs, foundations, and global development agencies. From the Obi Ogbonnia Sickle Cell Foundation to international players, Abuja offers a platform to forge scalable models of support, affordable insurance coverage, comprehensive education, mental health care, and grassroots outreach.

Now is the time to go from pilot projects to long-term partnerships that transform lives in underserved communities.

Reflecting on the Past, Building the Future

Past congresses made notable strides. Paris fostered cross-border ideas. Atlanta opened dialogue on health equity. London spotlighted funding and innovation. Accra brought a shift toward African-led solutions. But Abuja must be different, it must be decisive.

If the past was about raising awareness, Abuja 2025 must be about delivering change in the very land where the need is greatest.

The Legacy of the Global Congress

Since its inception, the Global Congress on Sickle Cell Disease has helped move the disorder out of the shadows. It has influenced global health conversations, spurred research, and laid the groundwork for policy advocacy.

Yet, without implementation in countries like Nigeria where the highest burden exists, those milestones risk remaining aspirational.

A Time to Choose Differently

Abuja 2025 is not just another conference; it is a test of commitment, solidarity, and vision. For governments, it is a call to political courage. For the global community, it is a call to equity. For sickle cell warriors, it is a chance to reclaim their narrative.

Sickle cell disorder may be genetic, but how we treat it as a society and as a global community, is a choice.

Let Abuja 2025 be the moment we chose differently.

Obi Light Ogbonnia is a 51-year-old sickle cell warrior, founder of the Obi Ogbonnia Sickle Cell Foundation and advocate for equitable healthcare access in Nigeria. He writes regularly on public health, policy and empowerment for vulnerable communities.

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JAMB: YabaTech Backs Oloyede’s Leadership Style, Urges Others To Take Cue

 The Yaba College of Technology (YabaTech) has declared its total support for the Joint Admissions and Matriculation Board (JAMB) leadership amidst the 2025 Unified Tertiary Matriculation Examination (UTME) developments.

Dr Ibraheem Abdul, Rector of Yabatech, disclosed in a statement on Friday in Lagos.

Abdul said that Prof Oloyede’s heartfelt apology and assumption of full responsibility demonstrated commendable leadership and integrity.

“We stand in solidarity with Prof Oloyede, we are with him in the future he beholds for JAMB. We reaffirm our confidence in his visionary leadership and urge other leaders in the country to take a cue from his leadership style,” he stated.

According to him, YabaTech remains committed to supporting JAMB’s initiatives and reforms aimed at enhancing the integrity and efficiency of its examination processes.

The rector noted that the recent technical glitches that affected approximately 379,997 candidates across 157 centres, particularly in Lagos and the South-East states, had understandably caused distress among students and stakeholders.

“As the Rector, and a dedicated advocate for educational excellence in Nigeria, I extend my unwavering support to Prof Is-haq Oloyede, Registrar of JAMB, and his entire team during this challenging period following the uproar concerning 2025 UTME.

“His commitment to transparency and prompt corrective measures, including the rescheduling of examinations for affected candidates, underscores his dedication to upholding the credibility of our educational assessments.

“This incident serves as a catalyst for all educational stakeholders to collaborate more closely, ensuring robust systems that can withstand unforeseen challenges,” he added.

The rector noted that though the overall performance in the 2025 UTME had raised concerns, it was, however, imperative to recognize the complexities involved in administering large-scale examinations in a technologically evolving environment. (NAN)

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UNICEF, GAVI Donate Four Ambulance Boats, Generator to Bayelsa

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From Mike Tayese, Yenagoa

The United Nations Children’s Education Fund (UNICEF) and its partners on Tuesday donated another four Ambulances Boat to the Bayelsa state government for easy access to healthcare in riverine communities.

Other items donated were one sound proof generator 30kva to the Primary Healthcare Board for smooth running of day to day activities of the board and to facilitate healthcare delivery.

Speaking during the handing over ceremony at the my government jetty Ministry of Transport, Chief of Field UNICEF Nigeria Office, Judith Leveillee said the boat means a lot more than just an ordinary boat, saying it is a means to save lives, to save God giving lives.

According to her, everyone must make sure the boats are used for the purpose of which it is intended and “I want to recognize the hard work of the health workers and the authorities. I believe the event of today coupled with the rain and lightning will inspire us to navigate the creek to take health care to the vulnerable and less privilege”.

“I was excited when I was told that I will be coming to Nigeria eight months ago because Nigeria is a hub and also giant of Africa because there are so many talented people in this country. For me the children of Nigeria deserve the best, Africa deserves the best. But in order to make this happen, we have to make sure they have access to quality health care, quality education, and quality protections. And this can only happen if the communities and the authorities work hands in hand.

“We want to thank our donors, the Global Alliance, for vaccine and Immunization, WHO and all the health workers, we want to thank the government of Bayelsa state, and the authority with which it is leadership. We have made tremendous progress”.

She said from a report available to her, that immunization from four years ago was so low. “But thanks to the engagement of everyone, we have been able to increase the immunization by 300 percent, it’s amazing. It shows that things can change, when we look back, immunization was just about 20 or 30 percent, we don’t want to go back to those days.

“Because we want to make sure if there is a future nobel prize winner from bayelsa, if there’s a future star in bayelsa they need to die because of preventable disease and we don’t want a mother to lose a child or mother to die because of complications. Is on all of us, we are all carrying a responsibility to make it happen “.

Speaking further said, it’s really great that the projects make a change but that the change needs to be sustained. Adding that it needs to be sustained by everyone’s hard work. “In the course of this project, about eight to nine hundred workers have been employed and I believe that the Bayelsa state government will be able to absolve the workforce to continue the achievements.

“It’s for the good of the children, mothers and parents in Bayelsa state. Long life for the project and all the communities and strive for prosperity. We are also handing over a generator to supply electricity to make sure that the boat house is operational. One important thing is to make sure the boats have fuel and are maintained and cared for so that they can last the longest in the future”.

“I want to thank everyone that is involved in these projects and I want to reiterate that UNICEF is committed to supporting the Bayelsa state government in all its efforts to improve the life of children and its citizens. Together we can work to better the health of our people especially in the south south, especially the population of the riverine communities, so that we ensure that no one is left behind”, she said.

Receiving the items on behalf of the state government, the Commissioner of Health, Prof. Seiyefa Brisibe said, as a state they are extremely grateful and extremely appreciative of the partnership that is working.

Brisibe said the GAVE, UNICEF HSS MOU had made a lot of progress, saying the outcome is better because the MOU key into the state government vision of the ASSURED prosperity agenda which the “R” is basically stand for Robust Health care and the vision of the ministry is to see that they increase life expectancy of the citizens and to improve the quality of life.

According to the Health commissioner, he said it is when they work with the vision that will help increase life expectancy and to improve quality of life, saying that when you understand that no child needs to die. “Because if a child dies, it means we have not achieved any life expectancy, also a child must grow up in the best quality of health so that that child can live up to the expectations and aspirations of the parents, society and the community which the child leaves.

“For us in Bayelsa, we should be able to produce children, Men, women that are competitive in all aspects of life. Yes in most cases we have protein but that is not enough to curb malnutrition, we used to have stunted growth, big tummy with tiny legs or big head with tiny legs. You can just imagine it because these are the things that have happened to me before.

“So when we see these types of opportunities, let the child as  is growing up even if not all at this point in time do not pass through the  challenges that we pass through.That they only experience the opportunities to be stronger, brilliant and to grow up to be faster than we did. For us as a ministry it is an opportunity to express ourselves to get that done.

“For us as a state, we believe no mother or child should die of excessive complications. Public Health should not in any way cause any mortality  in our society, that is the fundamental that we work with, and for me and the ministry we are working the talk in collaboration and in support with WHO, UNICEF and every other of our partners. Today marks another milestone because the boats will serve as an emergency to evacuate those children and mothers that needed medical help quickly”.

He thanked UNICEF,GAVI on behalf of the state government for keeping to their word, for improving our health outcomes across all indications, “is it immunization, stunted growth, child mortality, is it strengthening our ability to be resilient to see that we do not lose life to public health emergencies. This partnership has worked”.

He promised the partners that the boats given to the state government will be put to effective and efficient use to save lives, to prevent mortality of the children and mothers and the boats will shorten timeline in an emergency situation.

“I want to assure you that we will maintain it, so that it will be used for the good and prosperity of Bayelsa state “.

In his brief welcome remark, the executive secretary of Bayelsa Primary Healthcare Board, Dr. Appah Williams said, six ambulances boats were initially given to the state some time ago by UNICEF,GAVI HSS MOU.

He said even though the MOU has closed, the state is still receiving more and more items from the partners. The HSS MOU has really strengthened the bulk of what the state is doing. “These boats will help us in immunization outreach and other activities. It’s to support healthcare in the state and they also donated to us a 30kva generator to power the primary healthcare board, thanks to UNICEF”.

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Proposed Remedial Measures by JAMB Timely, Necessary — Education expert

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An Education expert, Mr Simon Fowowe, has commended the Joint Admission and Matriculation Board (JAMB), on plans to review the just concluded Unified Tertiary Matriculation Examination (UTME).

Fowowe, who is the National President of the Association of Nursery and Primary Education Instructors (ANPEIN), made the commendation in an interview on Wednesday in Lagos.

Fowowe described the plan as “timely and necessary” saying that there should be an immediate review of the marking, while calling for immediate investigation on the examination.

The education expert said that the proposed remedial reflected a critical juncture in Nigeria’s educational landscape.

“The recent discussions surrounding JAMB and its proposed remedial measures reflect a critical juncture in Nigeria’s educational landscape.

“While specific details about the remedial measures are yet to be fully disclosed, the context provided by recent events offers insight into the challenges and potential directions for reform,” he said.

He said a significant concern highlighted by JAMB was the prevalence of examination malpractice, particularly in the realm of Direct Entry admissions.

“The board has uncovered over 1,600 fake A’Level results, underscoring the need for stringent verification processes.

“JAMB has called for comprehensive legal reforms to combat this issue effectively, including amending outdated legislation and enhancing penalties for offenders.

“In early 2025, JAMB faced scrutiny from the National Assembly over alleged excessive expenditures, such as N1.1 billion on meals and N850 million on fumigation.

“However, upon review, the Joint Committee on Finance cleared JAMB of any financial impropriety, attributing the concerns to misunderstandings regarding budget proposals versus actual expenditures,” he said.

Fowowe added that JAMB had also identified inadequate broadband connectivity and limited technical expertise among staff as significant barriers to effective examination administration.

“The board has recommended establishing a national broadband funding scheme and offering career incentives for IT professionals to address these challenges .

“The case of Ejikeme Joy, who falsely claimed a Unified Tertiary Matriculation Examination (UTME) score of 362, highlights the importance of maintaining the integrity of examination results.

“JAMB’s swift action in exposing the fraud has been commended by educational experts, emphasising the need for all institutions to adopt similar measures to uphold credibility,” he said.

He said the call for remedial measures by JAMB was timely and necessary.

“Addressing examination malpractice, enhancing financial transparency, upgrading technological infrastructure, and maintaining institutional integrity are pivotal steps toward strengthening Nigeria’s educational system.

“It is imperative that all stakeholders, including government agencies, educational institutions, and the public, collaborate to support these reforms and ensure a fair and credible examination process.

“There seems no unified grading system in the last JAMB exam. It looks like a political results.

“The brilliants failed this year and that calls for investigation and remedial measures,” he said. (NAN)

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