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Abuja 2025: The Global Sickle Cell Congress Comes Home

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By Obi Light Ogbonnia

When the 5th Global Congress on Sickle Cell Disease convenes in Abuja in June 2025, it won’t just be another event in a long line of medical conferences, it will be a homecoming. For the first time, the world will gather at the very heart of the sickle cell crisis: Nigeria, the global epicenter, where over 150,000 babies are born annually with the condition.

For decades, sickle cell discourse has largely been shaped in the halls of Western research institutions and international conference centers.

Cities like Paris, Atlanta, London, and Accra have hosted past editions, laying foundations for research collaboration, clinical trials, and drug development.
Yet none of these cities carry the raw urgency, the lived reality, and the generational impact of sickle cell disorder quite like Abuja does.

In Nigeria, sickle cell isn’t just a statistic, it is a daily struggle etched into families, communities, and over four million warriors fighting for survival, dignity, and access to care.

A Turning Point for the Warriors

For Nigeria’s sickle cell warriors, Abuja 2025 carries profound expectations. Many are hoping for more than discussions, they are demanding action. They seek the latest in gene therapy and emerging treatments, but they also need policies that make these breakthroughs accessible. They want to be recognized not just as patients, but as partners in designing their future.

We want to move beyond awareness to empowerment, beyond diagnosis to solutions, beyond pity to partnerships.

Healthcare Systems Must Rise

The Congress is also a moment of truth for Nigeria’s healthcare system. Despite being the sickle cell capital of the world, the country still struggles with basic infrastructure, nationwide newborn screening, early intervention, and accessible care remain far from reach.

Will Abuja 2025 be remembered for grand speeches and panels, or for concrete policy shifts, investment in care centers, and life-changing public health decisions?

From Civil Society to Global Solidarity

This is also a call to action for NGOs, foundations, and global development agencies. From the Obi Ogbonnia Sickle Cell Foundation to international players, Abuja offers a platform to forge scalable models of support, affordable insurance coverage, comprehensive education, mental health care, and grassroots outreach.

Now is the time to go from pilot projects to long-term partnerships that transform lives in underserved communities.

Reflecting on the Past, Building the Future

Past congresses made notable strides. Paris fostered cross-border ideas. Atlanta opened dialogue on health equity. London spotlighted funding and innovation. Accra brought a shift toward African-led solutions. But Abuja must be different, it must be decisive.

If the past was about raising awareness, Abuja 2025 must be about delivering change in the very land where the need is greatest.

The Legacy of the Global Congress

Since its inception, the Global Congress on Sickle Cell Disease has helped move the disorder out of the shadows. It has influenced global health conversations, spurred research, and laid the groundwork for policy advocacy.

Yet, without implementation in countries like Nigeria where the highest burden exists, those milestones risk remaining aspirational.

A Time to Choose Differently

Abuja 2025 is not just another conference; it is a test of commitment, solidarity, and vision. For governments, it is a call to political courage. For the global community, it is a call to equity. For sickle cell warriors, it is a chance to reclaim their narrative.

Sickle cell disorder may be genetic, but how we treat it as a society and as a global community, is a choice.

Let Abuja 2025 be the moment we chose differently.

Obi Light Ogbonnia is a 51-year-old sickle cell warrior, founder of the Obi Ogbonnia Sickle Cell Foundation and advocate for equitable healthcare access in Nigeria. He writes regularly on public health, policy and empowerment for vulnerable communities.

Education

How female Medicine Degree Holder Abandoned Certificate for Carpentry- Bugaje

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The Executive Secretary, National Board for Technical Education (NBTE), Prof. Idris Bugaje has expressed the need to promote inclusivity, especially for women and persons with disabilities in technical education.

Bugaje stated this in Abuja while assessing the impact of President Bola Tinubu’s administration after two years in office.

He appealed for greater gender inclusivity in vocational and technical education, stressing that deliberate policies such as scholarships and incentives could help bridge the gender gap.

In support of his position, Bugaje shared an inspiring story of a female medical doctor who abandoned her medical career to pursue carpentry.

“There is a story I want to share with you, about a girl who was interested in becoming a carpenter.

“The father was a carpenter and they were four children in the family, three boys and herself.

“Whenever she joined the boys to the workshop, the father would send her away, saying, `you are a girl, go back to the house, you are not supposed to be a carpenter’’.

“Without giving considerations to the passion of the young girl, the father sent her to a medical school.

“She graduated with the MBBS, went and did the one-year internship after graduation, and chose a role as a medical doctor.

“After that, she came back to the father, returned the MBBS certificate to him, and thanked him.

“Afterward, she told the father that her passion is in carpentry, not to practice as medical doctor,” Bugaje narrated

He added that after spending seven years on medical training, the father had no option but to send her to Turkey to learn how to make furniture.

Addressing cultural and societal barriers often faced by young women in technical fields, Bugaje appealed to parents to support their daughters’ interests in trades like plumbing, electrical installation, and carpentry.

He also called on policymakers to prioritise passion and skill development among youth, especially girls, noting that such encouragement could lead to greater innovation and self-reliance.

“If they want to become carpenters, ICT experts, or POP artists, allow them.

“In skills’ training, passion is very important. That’s what motivates children and helps them innovate.

“We need to harness these innovations if the country is to move forward and rise beyond being a third-world nation,” he said.

He emphasized the need to have deliberate policies to encourage women to come into TVET through scholarships and other incentives. (NAN)

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Education

WAEC Apologies for Conducting English Exam Late, Cites Leakage  Prevention

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The West African Examinations Council (WAEC) has apologized for delay in conducting  English Language Paper 2 in the ongoing 2025 West African Senior School Certificate Examination (WASSCE).

 The took place on Wednesday evening.

In a statement by Moyosola Adesina, Acting Head of Public Affairs Department of
WAEC, the council said that it encountered challenges.

”While maintaining the integrity and security of our examination, we faced considerable challenges primarily due to our major aim of preventing leakage of any paper.

“We recognise the importance of timely conduct of examinations and the impact of this decision on candidates, their schools and parents, and we sincerely apologise for any inconveniences caused,” WAEC stated.

It said that it successfully achieved its objective but it inadvertently impacted the timeliness and seamless conduct of the examination.

“In spite of our best efforts, we encountered logistical hurdles, security concerns and socio-cultural factors that negatively influenced our operations,” WAEC said.

The council re-affirmed its commitment to upholding the highest standard in examination conduct, and pledged to continue to promote academic excellence. (NAN)

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FG vows full WAEC CBT shift by 2026 – Minister

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The Minister of Education, Dr Tunji Alausa, has reaffirmed the Federal Government’s commitment to fully transitioning to Computer-Based Test (CBT) examinations for the West African Examinations Council (WAEC) and other exam bodies by 2026.

Dr Alausa made this known while monitoring the conduct of WAEC’s CBT examinations in Abuja on Wednesday.

He expressed optimism about Nigeria’s capacity to modernise its examination system and reduce widespread malpractice through digital innovation.

Commending WAEC’s initiative, the minister described the shift from traditional pen-and-paper exams to CBT as a historic and crucial step toward fairness and educational integrity.

“We are working very hard to eliminate fraud in our exam system, and WAEC is taking the lead,” he said.

Highlighting the advantages of CBT, Alausa noted that the system simplified the exam process while significantly curbing cheating.

“We now have clear evidence that when exams are done using technology, the level of fraud is minimised to almost zero,” he stated.

He further lauded WAEC’s internal safeguards, explaining that the CBT system was operated via a secured Local Area Network (LAN), making it “literally impossible” to hack.

According to the minister, by Nov. 2025, all WAEC multiple-choice exams will be conducted using CBT.

He added that essay questions and NECO examinations would follow suit by 2026.

On infrastructure and logistics, particularly in remote areas, Alausa acknowledged the challenges but assured that scalable solutions are in progress.

“Are we going to be ready to provide every single needed infrastructure by November? Absolutely not.

“But as we move into the future, we will be ready. We have to challenge ourselves as government,” he said.

He also addressed concerns over the logistics of conducting multiple exams.

“In WAEC, the average student takes about eight to nine papers.

“They do it over several days. Those are the logistics we, as administrators, have to work through, and we already are,” he explained.

The ongoing WAEC exams, which began on April 24, are scheduled to conclude on June 20, 2025.

A total of 1,973,253 candidates from 23,554 schools are participating. Of this number, 979,228 candidates are male, accounting for 49.63 per cent, while 994,025 candidates are female, making up 50.37 per cent.(NAN)

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