Connect with us

Health

Epilepsy and Sickle Cell Disease: A Growing Dual Burden in Nigeria

Published

on

Share

By Obi Light Ogbonnia

In Nigeria today, a concerning health challenge is increasingly visible, one that carries deep human cost and calls urgently for collective action. An alarming number of sickle cell warriors are now also living with epilepsy, compounding suffering and exposing critical gaps in care and support.

Nigeria bears the highest global burden of Sickle Cell Disease (SCD).

An estimated 150,000 babies are born with SCD in Nigeria each year, far more than any other country.
At least 25 per cent of Nigerian adults carry the sickle cell gene, while 2–3 per cent of the population lives with the disease itself.

Sickle cell disease — a genetic blood disorder — is already a leading cause of chronic illness, recurrent pain, infection, stroke risk, and early mortality.

When epilepsy enters the picture, the challenges multiply. Epilepsy can be triggered by repeated strokes, silent cerebral injury, infection, or chronic oxygen deprivation, all complications commonly associated with SCD. Yet in Nigeria, limited access to neurological diagnosis and long-term management means many cases go undetected or untreated.

According to neurological research in Nigeria, the prevalence of epilepsy ranges widely, but some studies show notable variation due to differences in access to diagnosis and care. This reflects broader systemic issues: poverty, infrastructure gaps, and unequal access to specialist care.

Behind these statistics are real lives.

My young cousin, 18-year-old Chinenye Onuorah, faces both sickle cell disease and epilepsy. Watching her endure seizures, pain episodes, and repeat hospital visits — alongside her devoted but struggling mother, is heartbreaking. For families without adequate financial or healthcare support, the burden is overwhelming. No parent should have to choose between medication and basic needs.

Why This Dual Condition Is Becoming More Visible

There are several overlapping reasons:

Nigeria’s large SCD population naturally increases the risk of related complications.

Recurrent strokes and brain injuries associated with SCD are known risk factors for epilepsy.

Poor early screening and inconsistent access to comprehensive care limit early detection.

Weak health insurance coverage and limited specialist services compound long-term management.

What Nigeria Must Do

There is hope, not a cure yet, but effective steps toward better outcomes:

Routine newborn screening for SCD to enable early intervention and reduce complications.

Integration of neurological care into SCD programs so seizures and brain health are routinely monitored.

Access to affordable anticonvulsant and SCD therapies coupled with caregiver education.

Public awareness and stigma reduction campaigns focused on early testing and genotype education.

Partnerships between government, NGOs, health institutions, and communities to expand support networks.

The Federal Ministry of Health’s National Guideline for the Control and Management of Sickle Cell Disease underscores the complexity of SCD care and the need for improved multidisciplinary approaches nationwide.

A Call for Collaboration

Through the Obi Ogbonnia Sickle Cell Foundation, we are committed to working with health agencies, medical professionals, civil society leaders, researchers, corporate partners, and global health advocates to confront this crisis. While these conditions remain incurable, coordinated action can transform lives, reducing pain, restoring dignity, and saving young futures.

Today, I appeal to policymakers, foundations, healthcare providers, donors, and every concerned Nigerian:

Let us join forces to support those living with both sickle cell disease and epilepsy. No child should face this battle alone.

Obi Light Ogbonnia is the Founder, Obi Ogbonnia Sickle Cell Foundation Sickle Cell Warrior and Health Advocate.

Health

World Cancer Day: IMDF Marks Day with Inaugural Awareness Week in Otukpo

Published

on

Share

By David Torough, Abuja

The Idoma Medical Doctors Foundation (IMDF) has organised its maiden Cancer Awareness Week in commemoration of this year’s World Cancer Day, bringing together health professionals, government officials and traditional leaders in a coordinated campaign against the disease.

The three-day programme, tagged Sonny Echono Cancer Awareness Week, was described as the first major project of the current IMDF Executive Committee (EXCO).

The foundation’s Public Relations Officer, Dr. Onoja Prince, said the initiative signaled the EXCO’s resolve to prioritise preventive healthcare and community engagement.

The event attracted prominent stakeholders, including the Executive Secretary of the Tertiary Education Trust Fund (TETFund), Arc.

Sonny Echono; former Vice-Chancellor of the Federal University of Health Sciences, Otukpo (FUHSO), Prof. Innocent Ujah; Chief Medical Director of the Federal University of Health Sciences Teaching Hospital, Otukpo (FUHSOTH), Prof. Teddy Agida; and Benue State Commissioner for Health and Human Services, Dr. Ogwuche Paul. Members of the foundation also made financial contributions to support the programme.

The awareness drive was led by IMDF President, Prof. Steve Abah, a former Acting Vice-Chancellor of FUHSO, while planning was coordinated by a committee chaired by Prof. Edache Sylvanus Okpe.

Activities commenced with an advocacy visit to the Chairman of Otukpo Local Government Area, Hon. Maxwell Ogiri, where discussions focused on mobilising grassroots support for sustained health interventions.

The foundation also aired radio jingles and hosted interactive programmes anchored by Prof. Audu Onyemocho and Dr. Irowa, educating listeners on cancer prevention, early detection and available healthcare services. The sessions emphasised lifestyle modification, routine screening and timely diagnosis, while providing an opportunity for public engagement.

An awareness walk to the Primary Health Care Centre in Otukpo formed part of the campaign, during which residents received educational materials and counselling on risk factors such as tobacco use, unhealthy diets, unsafe sexual practices and environmental exposure.

On the second day, the team paid an advocacy visit to the FUHSOTH Chief Medical Director, Prof. Teddy Agida, to deepen institutional collaboration. The sensitisation campaign later moved to Ojale, home of the IMDF Secretariat, where community members gathered for further enlightenment.

The Oche-Ohimini, traditional ruler of Ohimini, received the delegation, demonstrating royal support for the initiative. The session featured prayers and a specially composed song by Prof. Audu Onyemocho designed to simplify cancer awareness messages and encourage proactive health-seeking behaviour.

In his remarks, the Commissioner for Health, Dr. Ogwuche Paul, commended IMDF for championing cancer awareness and pledged continued government support for related programmes. Prof. Abah reaffirmed the foundation’s commitment to bridging healthcare gaps, particularly in underserved communities.

The final day of the programme focused on plans to establish a cancer registry at the FUHSO Teaching Hospital. Organisers explained that the registry would strengthen data collection, enhance research capacity and support evidence-based policy decisions to improve cancer prevention and treatment outcomes.

Healthcare professionals and stakeholders at the session underscored the importance of systematic tracking of cancer cases to guide resource allocation and epidemiological studies.
IMDF noted that the Cancer Awareness Week was designed to foster collaboration among government agencies, medical practitioners and traditional institutions in confronting the burden of cancer in the region.

Continue Reading

Foreign News

Measles Cases Spike to 13,989 in Mongolia

Published

on

Share

Mongolia National Center for Communicable Diseases (NCCD) on Tuesday announced that 22 new cases of measles infection have been registered over the past 24 hours, bringing the national caseload to 13,989.

The NCCD said in a statement that 56 people remained in the hospital, including five critically ill children.

On Dec.

30, the NCCD said Mongolia’s measles death toll had reached 12 after one more related death was registered.

Therefore, the NCCD advised parents to protect their children from a potentially severe disease by getting them two doses of the measles vaccine.

Measles is a highly contagious viral disease transmitted by respiratory droplets and direct contact.

Common complications include fever, dry cough, runny nose, sore throat and inflamed eyes. The disease can be prevented by immunization.

Continue Reading

Health

Snakebite envenoming, silent killer in Nigeria – Expert warns

Published

on

Share

 Dr Chukwuma Anyaike, a retired Director of Public Health in the Federal Ministry of Health, has warned that snakebite envenoming, classified as a highest-priority Neglected Tropical Disease (NTD), is a major public health threat in Nigeria.

Anyaike, said on Monday in Abuja, describing snakebite as a “silent killer” that disproportionately affects farmers, herders and rural dwellers, groups critical to the nation’s food security and economic stability.

Recent data presented during  the World NTD Day 2026 indicate that Nigeria remains one of the world’s high-burden countries for snakebite envenoming, with the Carpet Viper (Echis ocellatus) accounting for over 60 per cent of reported cases.

He noted that inspite of the availability of effective treatment, outcomes remain poor due to delayed hospital presentation, inadequate health facility capacity and widespread reliance on traditional remedies.

“About 82 per cent of snakebite victims first seek traditional treatment. “These delays significantly increase the risk of death or permanent disability,” he said.

He emphasised that snakebite is not just a medical emergency but a socio-economic crisis.

“When a farmer is bitten, the impact goes beyond the individual. It affects household income, food production, and community resilience,” he said.

According to him, findings also reveal that nearly half of health facilities in high-burden areas lack the full capacity to administer antivenom, citing shortages of trained personnel, cold-chain systems and consistent antivenom supply.

“Specialised centres such as the Kaltungo Snakebite Hospital in Gombe State, as well as facilities in Bauchi State, have become referral points for severe cases, highlighting the limited distribution of functional snakebite treatment centres across the country,”.

He stressed that prevention remains one of the most effective strategies to reduce snakebite incidence, particularly among farmers and rural residents.

He advised residents to use torches or flashlights when walking outdoors at night, wear thick knee-high boots and long trousers when working on farms or in tall grass, and keep surroundings free of debris, woodpiles and overgrown weeds where snakes often hide.

He also highlighted the importance of a correct first-aid response in the event of a bite. “If a bite occurs, time is life. Victims should stay calm, move away from the snake, immobilise the affected limb and seek immediate medical care,” he said.

He cautioned against harmful practices such as tying tourniquets, cutting or sucking the wound, and applying herbs, noting that such actions often worsen injuries and increase the likelihood of infection and amputation.

“These practices do not neutralise venom. Delays in getting antivenom remain the leading cause of snakebite deaths in Nigeria,” he said.

He called for improved antivenom access, strengthened rural health infrastructure, and sustained public awareness campaigns as Nigeria aligns with the World Health Organisation’s target of halving snakebite deaths and disabilities by 2030.

He urged governments, development partners and communities to treat snakebite envenoming with urgency, stressing that awareness, early treatment and health system investment could save thousands of lives annually/

The WHO also said Nigeria is among the countries worst affected by snakebites, with an estimated 15,000 to 20,000 cases and roughly 2,000 deaths annually.

Some estimates of the WHO, suggested that the burden was higher, with 43,000 cases and 1,900 deaths reported in 2025 data. (NAN)

Continue Reading

Advertisement

Read Our ePaper

Top Stories

NEWS8 hours ago

Swem Karagbe Club Marks 30 Years, Urges Action on Benue Insecurity, Economic Reforms

ShareBy David Torough, Abuja The Swem Karagbe Club has marked its 30th anniversary alongside its 2025 Annual General Meeting in...

NEWS2 days ago

Adebayo Links Corruption to Poverty, Demands Leadership Change in 2027

ShareBy Mike Odiakose, Abuja The leader and presidential candidate of the Social Democratic Party (SDP) in the 2023 general election,...

Health2 days ago

World Cancer Day: IMDF Marks Day with Inaugural Awareness Week in Otukpo

ShareBy David Torough, Abuja The Idoma Medical Doctors Foundation (IMDF) has organised its maiden Cancer Awareness Week in commemoration of...

DEFENCE2 days ago

Troops Rescue Eight Abducted Wedding Guests in Kano

ShareTroops of 3 Brigade, Nigerian Army, have rescued eight of the 10 persons abducted by suspected terrorists at a wedding...

security2 days ago

Police Nab Motel Owner, 2 Others, Recover Firearm, in Anambra

ShareThe Police Command in Anambra has nabbed three male suspects in connection with illegal possession of firearms, and involvement in illicit drug activities in the...

security2 days ago

Police Arrest Kidnapping Suspect, Rescue 2 in Adamawa

ShareThe Police Command in Adamawa yesterday, said it has rescued two kidnap victims, and arrested one suspect during a coordinated security operation...

DEFENCE2 days ago

FRSC Disengages 43 Personnel for Desertion, Scandalous Behaviour, Patrol Misconduct

ShareThe Federal Road Safety Corps (FRSC) has taken decisive and uncompromising disciplinary action by disengaging 43 personnel from its service...

NEWS2 days ago

From National Cake to National Duty: A Hard Call to Nigeria’s Political Class

ShareBy Isaac Asabor Nigeria does not suffer from a shortage of talent. It suffers from a shortage of conscience in...

BUSINESS2 days ago

Valentine: Men Dominate Lagos Gift Market as Perfumes, Wigs Drive Sales Surge

ShareVendors of gift items in Lagos say men have overwhelmingly dominated the purchase of Valentine gifts this season, with an...

Entertainment/Arts/Culture2 days ago

I Was Refused Regular Jobs Because Of my Physique – Nkubi

ShareNigerian actor, Victor Udochukwu Nwaogu, popularly known as Nkubi, has revealed that one of the reasons he became an actor was...